Journal of Rehabilitation Research & Development (JRRD)

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Volume 49 Number 1, 2012
   Pages 155 — 174

Abstract — Activity and participation after spinal cord injury: State-of-the-art report

Philip M. Ullrich, PhD;1–2* Ann M. Spungen, EdD;3 Darryn Atkinson, PT;4 Charles H. Bombardier, PhD;2 Yuying Chen, MD, PhD;5 Norma A. Erosa, MS;6 Shirley Groer, PhD;7 Lisa Ottomanelli, PhD;7 David S. Tulsky, PhD8
1Spinal Cord Injury and Disorders Services, Department of Veterans Affairs (VA) Puget Sound Healthcare System, Seattle, WA; 2Department of Rehabilitation Medicine, University of Washington, Seattle, WA; 3VA Rehabilitation Research and Development (RR&D), Center of Excellence for the Medical Consequences of Spinal Cord Injury, James J. Peters VA Medical Center, Bronx, NY; 4The Institute for Rehabilitation and Research Memorial Hermann, Houston, TX; 5Department of Physical Medicine and Rehabilitation, University of Alabama at Birmingham, Birmingham, AL; 6Texas A&M University, Counseling Psychology, College Station, TX; 7VA Health Services Research and Development/RR&D Center of Excellence Maximizing Rehabilitation Outcomes, James A. Haley Veterans Hospital, Tampa, FL; 8Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI

Abstract–The importance of activities and community participation for persons with spinal cord injury (SCI) has been recognized for decades and yet theoretical and empirical advances have been limited. This report summarizes the recommendations for researchers on the topic of measuring activity and participation among persons with SCI formulated by the Spinal Cord Injury workgroup at the State-of-the-Art Conference on Outcome Measures in Rehabilitation held in January 2010. Activity and participation were defined as independent constructs ideally measured in reference to personal values and environmental influences. Measures of activity, participation, and factors influencing activity and participation are reviewed and critiqued. Gaps in available measures are described, measures in development are discussed, and suggestions for future research are made.

Key words: activity, disability, employment, functioning, measurement, outcomes, participation, quality of life, rehabilitation, spinal cord injury.

View HTML  ¦  View PDF  ¦  Contents Vol. 49, No. 1
This article and any supplementary material should be cited as follows:
Ullrich PM, Spungen AM, Atkinson D, Bombardier CH, Chen Y, Erosa NA, Groer S, Ottomanelli L, Tulsky DS. Activity and participation after spinal cord injury: State-of-the-art report. J Rehabil Res Dev. 2012;49(1):155–74.
http://dx.doi.org/10.1682/JRRD.2010.06.0108
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Last Reviewed or Updated  Wednesday, February 15, 2012 2:22 PM

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